The Application obtains the information you provide when you download and register the Application.
When you register with us and use the Application, you will provide some information that is accessible by the research team. This information includes: (a) your name (first name or pseudonym), email address, age, gender, username, password and other registration information; (b) information about your condition, which may include self-reported symptom information and goals that you enter into the app; (c) information you enter in the iCanCope community; and (d) information you provide us when you contact us for technical help with the application. The research team may also use your contact information (phone or email) to share important information about the app and required updates.
In addition, the Application may collect certain information automatically, including, but not limited to, the type of mobile device you use, your mobile devices unique device ID, the IP address of your mobile device, your mobile operating system, the type of mobile Internet browsers you use, and information about the way you use the Application.
This Application does not collect precise information about the location of your mobile device.
Only aggregated, anonymized data is periodically transmitted to external services to help us improve the Application and our service. We will share your information with third parties only in the ways that are described in this privacy statement. We may disclose User Provided and Automatically Collected Information:
The information you enter into this app will not be provided to your healthcare team and is not part of your medical record.
You can stop all collection of information by the Application easily by uninstalling the Application. You may use the standard uninstall processes as may be available as part of your mobile device or via the mobile application marketplace or network.
We will retain User Provided data for as long as you use the Application. For the purposes of the research trial, your data will be stored for 7 years as per the Records Retention and Destruction Policy at SickKids.
We are concerned about safeguarding the confidentiality of your information. We provide physical, electronic, and procedural safeguards to protect information we process and maintain. For example, we limit access to this information to authorized employees and contractors who need to know that information in order to operate, develop or improve our Application.
For more detailed information about who sees your information and about your choices contact the Privacy Office.
Telephone: 416-340-4800 ext. 6937
2 Bloor Street East
Phone: 1 800 387 0073